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1

Development and Validation of a Cystic Fibrosis Patient and Family Member Experience of Care Survey

Homa, Karen, Sabadosa, Kathryn A., Nelson, Eugene C., Rogers, William H., Marshall, Bruce C.

Journal:

Quality Management in Health Care

Year:

2013

Language:

english

File:

PDF, 486 KB

english, 2013

2

Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative

Sabadosa, Kathryn A., Godfrey, Marjorie M., Marshall, Bruce C.

Journal:

Orphanet Journal of Rare Diseases

Year:

2018

Language:

english

File:

PDF, 617 KB

english, 2018

3

A qualitative study of design stakeholdersâ views of developing and implementing a registry-based learning health system

Dixon-Woods, Mary, Campbell, Anne, Chang, Trillium, Martin, Graham, Georgiadis, Alexandros, Heney, Veronica, Chew, Sarah, Van Citters, Aricca, Sabadosa, Kathryn A., Nelson, Eugene C.

Journal:

Implementation Science

Year:

2020

File:

PDF, 757 KB

2020

4

Cystic Fibrosis Foundation Practice Guidelines for the Management of Infants with Cystic Fibrosis Transmembrane Conductance Regulator-Related Metabolic Syndrome during the First Two Years of Life and Beyond

Drucy Borowitz, Richard B. Parad, Jack K. Sharp, Kathryn A. Sabadosa, Karen A. Robinson, Michael J. Rock, Philip M. Farrell, Marci K. Sontag, Margaret Rosenfeld, Stephanie D. Davis, Bruce C. Marshall,

Journal:

The Journal of Pediatrics

Year:

2009

Language:

english

File:

PDF, 741 KB

english, 2009

5

Cystic Fibrosis Foundation Evidence-Based Guidelines for Management of Infants with Cystic Fibrosis

Drucy Borowitz, Karen A. Robinson, Margaret Rosenfeld, Stephanie D. Davis, Kathryn A. Sabadosa, Stephanie L. Spear, Suzanne H. Michel, Richard B. Parad, Terry B. White, Philip M. Farrell, Bruce C. Mar

Journal:

The Journal of Pediatrics

Year:

2009

Language:

english

File:

PDF, 1.53 MB

english, 2009

6

The preoperative intraaortic balloon pump in coronary bypass surgery: A lack of evidence of effectiveness

Roger J.F. Baskett, Gerald T. O'Connor, Gregory M. Hirsch, William A. Ghali, Kathryn A. Sabadosa, Jeremy R. Morton, Cathy S. Ross, Felix Hernandez, William C. Nugent, Stephen J. Lahey, Donato Sisto, L

Journal:

American Heart Journal

Year:

2005

Language:

english

File:

PDF, 113 KB

english, 2005

7

A multicenter comparison of intraaortic balloon pump utilization in isolated coronary artery bypass graft surgery

Roger J.F Baskett, Gerald T O'Connor, Gregory M Hirsch, William A Ghali, Kathy Sabadosa, Jeremy R Morton, Cathy S Ross, Felix Hernandez, William C Nugent Jr, Stephen J Lahey, Donato A Sisto, Lawrence

Journal:

The Annals of Thoracic Surgery

Year:

2003

Language:

english

File:

PDF, 151 KB

english, 2003

8

Cystic Fibrosis Pulmonary Guidelines

Mogayzel, Peter J., Naureckas, Edward T., Robinson, Karen A., Mueller, Gary, Hadjiliadis, Denis, Hoag, Jeffrey B., Lubsch, Lisa, Hazle, Leslie, Sabadosa, Kathy, Marshall, Bruce

Journal:

American Journal of Respiratory and Critical Care Medicine

Year:

2013

Language:

english

File:

PDF, 763 KB

english, 2013

9

Adults with Cystic Fibrosis at End of Life: A Nationwide Survey of Current Practices (S723)

Goggin, Jessica, Cohen, Rubin, Dellon, Elisabeth, Sabadosa, Kathryn, Homa, Karen, Marshall, Bruce

Journal:

Journal of Pain and Symptom Management

Year:

2014

Language:

english

File:

PDF, 57 KB

english, 2014

10

Clinical Care Guidelines for Cystic Fibrosis-Related Diabetes: A position statement of the American Diabetes Association and a clinical practice guideline of the Cystic Fibrosis Foundation, endorsed by the Pediatric Endocrine Society

Moran, A., Brunzell, C., Cohen, R. C., Katz, M., Marshall, B. C., Onady, G., Robinson, K. A., Sabadosa, K. A., Stecenko, A., Slovis, B.

Journal:

Year:

2010

Language:

english

File:

PDF, 190 KB

english, 2010

11

[IEEE World Haptics 2009 - Third Joint EuroHaptics conference and Symposium on Haptic Interfaces for Virtual Environment and Teleoperator Systems - Salt Lake City, UT, USA (2009.03.18-2009.03.20)] World Haptics 2009 - Third Joint EuroHaptics conference and Symposium on Haptic Interfaces for Virtual Environment and Teleoperator Systems - Variable Resistance Hand Device using an electro-rheological fluid damper

Weinberg, B., Khanicheh, A., Sivak, M., Unluhisarcikli, O., Morel, G., Shannon, J., Kelliher, J., Sabadosa, M., Bonmassar, G., Patritti, B., Bonato, P., Mavroidis, C.

Year:

2009

Language:

english

File:

PDF, 1.64 MB

english, 2009

12

Key findings of the US Cystic Fibrosis Foundation's clinical practice benchmarking project

Boyle, M. P., Sabadosa, K. A., Quinton, H. B., Marshall, B. C., Schechter, M. S.

Journal:

BMJ Quality & Safety

Year:

2014

Language:

english

File:

PDF, 1.17 MB

english, 2014

13

The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement

Sabadosa, K. A., Batalden, P. B.

Journal:

BMJ Quality & Safety

Year:

2014

Language:

english

File:

PDF, 217 KB

english, 2014

14

Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery

Abbott, J., Elborn, J.S., Georgiopoulos, A.M., Goldbeck, L., Marshall, B.C., Sabadosa, K.A., Smith, B.A., Quittner, A.L.

Journal:

Journal of Cystic Fibrosis

Year:

2015

Language:

english

File:

PDF, 1.07 MB

english, 2015

15

Longevity of Patients With Cystic Fibrosis in 2000 to 2010 and Beyond: Survival Analysis of the Cystic Fibrosis Foundation Patient Registry

MacKenzie, Todd, Gifford, Alex H., Sabadosa, Kathryn A., Quinton, Hebe B., Knapp, Emily A., Goss, Christopher H., Marshall, Bruce C.

Journal:

Annals of Internal Medicine

Year:

2014

Language:

english

File:

PDF, 229 KB

english, 2014

16

Advance care planning in cystic fibrosis: Current practices, challenges, and opportunities

Dellon, Elisabeth P., Chen, Elaine, Goggin, Jessica, Homa, Karen, Marshall, Bruce C., Sabadosa, Kathryn A., Cohen, Rubin I.

Journal:

Journal of Cystic Fibrosis

Year:

2015

Language:

english

File:

PDF, 353 KB

english, 2015

17

International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety

Quittner, Alexandra L, Abbott, Janice, Georgiopoulos, Anna M, Goldbeck, Lutz, Smith, Beth, Hempstead, Sarah E, Marshall, Bruce, Sabadosa, Kathryn A, Elborn, Stuart

Journal:

Year:

2015

Language:

english

File:

PDF, 862 KB

english, 2015

18

Experience of care from the perspective of individuals with cystic fibrosis and families: Results from 70 CF Foundation accredited programs in the USA

Homa, Karen, Sabadosa, Kathryn A., Marrow, Laura C., Marshall, Bruce C.

Journal:

Journal of Cystic Fibrosis

Year:

2015

Language:

english

File:

PDF, 230 KB

english, 2015

19

Point: Does the Risk of Cross Infection Warrant Exclusion of Adults With Cystic Fibrosis From Cystic Fibrosis Foundation Events? Yes

Jain, Manu, Saiman, Lisa M., Sabadosa, Kathy, LiPuma, John J.

Journal:

Year:

2014

Language:

english

File:

PDF, 72 KB

english, 2014

20

Rebuttal From Dr Jain et al

Jain, Manu, Saiman, Lisa M., Sabadosa, Kathy, LiPuma, John J.

Journal:

Year:

2014

Language:

english

File:

PDF, 57 KB

english, 2014

21

End-of-life practice patterns at U.S. adult cystic fibrosis care centers: A national retrospective chart review

Chen, Elaine, Homa, Karen, Goggin, Jessica, Sabadosa, Kathryn A., Hempstead, Sarah, Marshall, Bruce C., Faro, Albert, Dellon, Elisabeth P.

Journal:

Journal of Cystic Fibrosis

Year:

2017

Language:

english

File:

PDF, 647 KB

english, 2017

22

Defining palliative care in cystic fibrosis: A Delphi study

Dellon, E.P., Goggin, J., Chen, E., Sabadosa, K., Hempstead, S.E., Faro, A., Homa, K.

Journal:

Journal of Cystic Fibrosis

Year:

2017

Language:

english

File:

PDF, 376 KB

english, 2017

23

Patients and families experience with pharmacist care at cystic fibrosis foundation accredited clinics

Young, David C., Autry, Elizabeth, Zobell, Jeffery T., Kormelink, Lauren, Homa, Karen, Sabadosa, Kathryn A., Kanga, Jamshed, Anstead, Michael, Kuhn, Robert

Journal:

Pediatric Pulmonology

Year:

2019

Language:

english

File:

PDF, 608 KB

english, 2019

24

Patients and families experience with pharmacist care at cystic fibrosis foundation accredited clinics

Young, David C., Autry, Elizabeth, Zobell, Jeffery T., Kormelink, Lauren, Homa, Karen, Sabadosa, Kathryn A., Kanga, Jamshed, Anstead, Michael, Kuhn, Robert

Journal:

Pediatric Pulmonology

Year:

2019

File:

PDF, 608 KB

2019

25

Design and Implementation of a Novel Electronic Health Record Tool to Enhance the Care of Individuals with Cystic Fibrosis: The Cystic Fibrosis Note Template

Leander, David M., Gifford, Alex H., Mecchella, John N., Sabadosa, Kathryn A., Van Citters, Aricca, Snide, Jennifer A., Nelson, Eugene C.

Journal:

Year:

2019

Language:

english

File:

PDF, 567 KB

english, 2019

26

P455 Mental health in cystic fibrosis: a change package for implementation

Lomas, P., Tran, Q., Sabadosa, K., Reno, K.

Journal:

Journal of Cystic Fibrosis

Year:

2019

Language:

english

File:

PDF, 55 KB

english, 2019

27

P455 Mental health in cystic fibrosis: a change package for implementation

Lomas, P., Tran, Q., Sabadosa, K., Reno, K.

Journal:

Journal of Cystic Fibrosis

Year:

2019

File:

PDF, 55 KB

2019